Amy came to me back in 2017, she found my support group online. She was broken, broken by these debilitating conditions and symptoms engulfing her life. She was very depressed and suicidal, something many of us might experience when these conditions take hold and get severely chronic. She was not in a good place, I felt for her so much as she reminded me of when I was at my worst between 2013/15.
I meet so many people through social media, lots of inspirational, brave individuals. People suffering from debilitating conditions, trying to get through each day as best they can. People contact me at the start of their healing journeys, middle or when they have got better, some people keep me updated years after with how they are getting on, which is lovely. What is really touching is the fact they contact me in the first place, reaching out to thank me, to ask me questions etc, its actually a brave thing to do as you are opening up to a stranger.
I had a lovely message the other day from Jake, who I had never spoken to before. He sent me this message.
9 Years ago I fell ill and I have to say one of the most frustrating things about suffering from invisible illnesses is the fact you look and act ok so people assume you are ok inside. Of course, if I was in their shoes, I would think exactly the same thing! If a person looks ok then its hard to believe that they are not ok.
So today was the day I popped back to Royal Surrey County Hospital Audiology (my second home!) for testing. I was going for two reasons, one to have a VEMP test (will explain what that is in a moment!) and the second was to have a positional test done (for BPPV). The last time I…
This has been a huge learning curve for me as the mother of a daughter who suffers from vestibular conditions and mental health, all beginning back in 2010 after my grandchildren were born.
I am a very proud mummy of gorgeous identical twin girls who are nearly 8 years old, they are my world. They are my best friends, my companions, my sanity, my little comedy act, they are my WHY. I am also very happily married to a fantastic man, who has been my rock, my sounding board and my therapist!!