9 Years ago I fell ill and I have to say one of the most frustrating things about suffering from invisible illnesses is the fact you look and act ok so people assume you are ok inside. Of course, if I was in their shoes, I would think exactly the same thing! If a person looks ok then its hard to believe that they are not ok.
My lovely mum wrote a blog 2 years ago in June 2017. As its Mothers Day it seemed perfect timing to give an update 2 years on from her original post. So she has once again put pen to paper and written the below, which I cried over when I read it! It is so lovely to get someone else’s perspective as an onlooker, as with these conditions you do feel rather lonely and feel its your own battle. I am still waiting for my husband to write his blog, he has promised to do one, one day I hope to share this with you.
Over the years there is one main thing I have learnt which helps with my symptoms Distractions.
When my mind is occupied it really helps me feel better. It does not matter which symptom is heightened, when I am distracted it helps keep my mind of that symptom/s. Ok they do not totally go away but it dampens them down a bit!
I used to love using electric toothbrushes purely because I felt my teeth were extra clean afterwards. But unfortunately since I have had my vestibular disorders I have had to stop using electric toothbrushes as they make me more dizzy due to the vibrations so close to my ears. So when this opportunity came up…
I now believe I have been given these health issues for a reason, I was given them to help others. I have always loved helping others but now I have a reason, now I can share my story and my battles and wins and help others get through theirs.
This has been a huge learning curve for me as the mother of a daughter who suffers from vestibular conditions and mental health, all beginning back in 2010 after my grandchildren were born.