My lovely mum wrote a blog 2 years ago in June 2017. As its Mothers Day it seemed perfect timing to give an update 2 years on from her original post. So she has once again put pen to paper and written the below, which I cried over when I read it! It is so lovely to get someone else’s perspective as an onlooker, as with these conditions you do feel rather lonely and feel its your own battle. I am still waiting for my husband to write his blog, he has promised to do one, one day I hope to share this with you.