vestibular disorders association – Welcome to my dizzy world

Live to inspire, and one day people will say, because of you, I didn’t give up….

I meet so many people through social media, lots of inspirational, brave individuals. People suffering from debilitating conditions, trying to get through each day as best they can. People contact me at the start of their healing journeys, middle or when they have got better, some people keep me updated years after with how they are getting on, which is lovely. What is really touching is the fact they contact me in the first place, reaching out to thank me, to ask me questions etc, its actually a brave thing to do as you are opening up to a stranger.

I had a lovely message the other day from Jake, who I had never spoken to before. He sent me this message.

Dry January!? Try 6 years being alcohol free! Best thing I ever did!

If you would have told me 11 years ago before I got ill, that I would be alcohol free from 2013 forever, I would have never ever believed you! Pre-illness and in fact pre-children, I was a big drinker! The party animal in fact! Out of all my friends, I was the one that probably would drink them under the table….

You couldn’t make this S**t up!

9 Years ago I fell ill and I have to say one of the most frustrating things about suffering from invisible illnesses is the fact you look and act ok so people assume you are ok inside. Of course, if I was in their shoes, I would think exactly the same thing! If a person looks ok then its hard to believe that they are not ok.

Support……lets go deep

Support….what does it mean? To me support means a multitude of things. We need support throughout our lives for a number of reasons, but when the sh*t really hits the fan, who is there to support you when you need it most?

Turning my anxiety/dizzy world into positives…

I now believe I have been given these health issues for a reason, I was given them to help others. I have always loved helping others but now I have a reason, now I can share my story and my battles and wins and help others get through theirs.

A mothers perspective…

This has been a huge learning curve for me as the mother of a daughter who suffers from vestibular conditions and mental health, all beginning back in 2010 after my grandchildren were born.

Being open from the start…

At the beginning of my vestibular journey, I was not good at opening up, I would avoid talking about my disorders to people, particularly strangers. That was until my CBT Therapist convinced me to open up more, talk more about my struggles. If I am having a bad day, say I am having a bad…

Motivation….

Motivation….mmmmm, it is sometimes a struggle to get motivated….so what makes you get up in the mornings, what motivates you to get on with your day. What inspires and kick starts you to get moving and on with life? Being a positive person, like myself, does not necessarily mean I have the motivation to get…

When the chips are down…

When the chips are down, what do you do? When you are not feeling great, do you want to curl up in a ball and hide away? Do you want to eat the entire contents of your fridge, drink, smoke etc. Whatever your vice is, you feel like having it in abundance when things are not quite going your way.

Finding the right balance….

Back when I was under VRT (Vestibular Rehabilitation Therapy) for Vestibular Neuritis, I was very new to vestibular disorders so was finding my feet with it all. I remember my therapist banging on to me about finding the right balance. All I was interested in at the time was the exercises she was doing with…

Positivity and hope….

A world of dizziness every single day for me A condition that’s hard for people to see Invisible dizziness, vertigo and headaches to boot From mild symptoms to sometimes very acute But what has got me through is a positive attitude Even if everything I look at seems very skewed A lot of vestibular disorders…