During the time I was getting diagnosed and having treatment for my vestibular issues I discovered some other symptoms that concerned me. They were feelings of skin numbness, altered sensation on my right hip. I also had tingling and buzzing down my legs and fatigue. My Mum had MS and was finally diagnosed in 1997 after having years of symptoms. With that knowledge I visited my GP and subsequently had an mri and saw a neurologist who diagnosed me with MS in June 2018.
If you would have told me 11 years ago before I got ill, that I would be alcohol free from 2013 forever, I would have never ever believed you! Pre-illness and in fact pre-children, I was a big drinker! The party animal in fact! Out of all my friends, I was the one that probably would drink them under the table….
My lovely mum wrote a blog 2 years ago in June 2017. As its Mothers Day it seemed perfect timing to give an update 2 years on from her original post. So she has once again put pen to paper and written the below, which I cried over when I read it! It is so lovely to get someone else’s perspective as an onlooker, as with these conditions you do feel rather lonely and feel its your own battle. I am still waiting for my husband to write his blog, he has promised to do one, one day I hope to share this with you.
Before I got ill in 2010, I had no clue about meditation. If you had asked me what it was back then, I would have shown you a blank bemused face, and said “someone cross legged on the floor with the two fingers together humming?”. I had no idea that I would be getting into…
Support….what does it mean? To me support means a multitude of things. We need support throughout our lives for a number of reasons, but when the sh*t really hits the fan, who is there to support you when you need it most?
Over the years there is one main thing I have learnt which helps with my symptoms Distractions.
When my mind is occupied it really helps me feel better. It does not matter which symptom is heightened, when I am distracted it helps keep my mind of that symptom/s. Ok they do not totally go away but it dampens them down a bit!
How you can create balance in your day today? A journey of a thousand miles must begin with a single step – Lao Tzu This is balance awareness week and I am aware that this can be a very challenging and transformational time and how vestibular disorders affect people both physically, mentally and emotionally. The…
This has been a huge learning curve for me as the mother of a daughter who suffers from vestibular conditions and mental health, all beginning back in 2010 after my grandchildren were born.
Motivation….mmmmm, it is sometimes a struggle to get motivated….so what makes you get up in the mornings, what motivates you to get on with your day. What inspires and kick starts you to get moving and on with life? Being a positive person, like myself, does not necessarily mean I have the motivation to get…
When the chips are down, what do you do? When you are not feeling great, do you want to curl up in a ball and hide away? Do you want to eat the entire contents of your fridge, drink, smoke etc. Whatever your vice is, you feel like having it in abundance when things are not quite going your way.